Mummy Edwards

Mummy Edwards

Cancer update #11

Cancer update #11

The past couple of weeks have been frustrating. One of the struggles that comes with being treated in two different trusts, is that hospitals aren’t very good at talking to each other and allowing the other access to information. This is particularly difficult when a doctor goes away or results are needed by multiple professionals. I am slowly becoming better at chasing, nudging and badgering doctors, and after many phone calls we finally got the pathology results back from surgery last month.

The surgery removed four lumps from the lymph nodes in my groin and each were sent away for pathology individually. Of the four, three came back clear but sarcoma cells were found in the last. Unfortunately this was also the lump that the surgeon had struggled with, and only partially removed, meaning that it will most likely require more surgery soon. The amount of cancer that they found was tiny, far too small to have been seen on any scans. While it is disappointing that the cancer has spread, the tiny amount shows it is still growing at a very slow pace and means radiotherapy will be unlikely after surgery. Radio struggles both deep inside the body and isn’t good at being super precise, so it is unlikely to be helpful in this instance. My case is being discussed at the national sarcoma meeting on Monday evening, so I should be given a clearer plan on Tuesday, and hopefully an idea of when surgery might be.

Many people have asked how I’m feeling about the results and it has been difficult to answer. I was expecting either to hear that the cancer had spread and requires more radiotherapy. Given where the lumps were, this would have meant deciding whether to take measures to preserve my fertility - freezing eggs and taking strips of lining from the uterus. Or, to be told there was no cancer, and therefore to be in remission. The real results were, however, somewhat in the middle and have taken a little time to get our heads around. 

For those of you who continue to pray for us. Thank you. It is such a blessing top know we have friends around the globe praying on our behalf, particularly in the times praying is difficult myself.

  • Give thanks for God sustaining us through a week of sickness and an upside down house. He is strong when we are weak.
  • Please pray for clear and conclusive results from a CT scan I had on Friday. It looked at my chest, abdomen and pelvis - the most likely places for a clear cell sarcoma to spread to next, if it does so. The results are important to have before a plan can be made my the sarcoma team.
  • Pray that my foot would continue to heal. I posted a photo of the blister in another blog. After the blister bust, and was put through a couple more weeks of radio, it was burnt badly! The burns are healing well and I’m finally back wearing my boots but it is still very sore and requiring daily care. 
  • Good rest and children who sleep at the same time!